Union Health & Family Welfare Minister approved the “National Policy for Rare Diseases 2021” on 30th March 2021. National Policy for Rare Diseases 2021 aims to lower the high cost of treatment for rare diseases, with increased focus on indigenous research and local production of medicines.
About Rare diseases
The field of rare diseases is very complex and heterogeneous and prevention, treatment and management of rare diseases has multiple challenges. Early diagnosis of rare diseases is a major challenge owing to a variety of factors that include lack of awareness among primary care physicians, lack of adequate screening and diagnostic facilities etc.